Clinical Trials

Databases

• CenterWatch
  A publishing and information services company providing patients, their advocates, and research professionals with a variety of information and services relating to clinical research. Provides an extensive list of IRB-approved clinical trials being conducted globally.
• Drugs in Clinical Trials database
  This site is a comprehensive online resource offering detailed profiles of new investigational treatments in phase I through III clinical trials. Updated weekly, the online directory provides information on more than 2,000 drugs for more than 800 disease conditions worldwide in a well-organized and easy-to-reference format. Detailed profile information is provided for each drug.
• ClinicalStudyResults.org
  Created by the Pharmaceutical Research and Manufacturers of America, this is a central, widely accessible, web-based repository for clinical study results in a reader-friendly, standardized format, making clinical trial results for U.S.-marketed pharmaceuticals more transparent.
• ClinicalTrials.gov
  A service of the National Institutes of Health providing regularly updated information about a large number of federally and privately supported clinical research trials. Provides information about a trial's purpose, who may participate, locations, and phone numbers for more details.
• TrialsCentral.org
  This nonprofit site provides free and confidential ways to search for government and private clinical trials, a list of frequently asked questions, a drug research list, and a resources page.
• National Center for Complementary and Alternative Medicine
  As a part of NIH, this institute works on complementary and alternative medicines and treatments through research, research training, outreach, and integration. The site includes a large section on clinical trials, including a database of those run by the center and a list of frequently asked questions.
• National Heart, Lung, and Blood Institute
  As a part of NIH, this institute works on a national program for diseases of the heart, lung, blood, blood vessels, and cholesterol. The site has information about NHLBI clinical trials conducted in these areas at the institute in Bethesda, MD and across the country.

Disease-specific

• Accelerated Cure Project for Multiple Sclerosis
  Provides general clinical trial information and lists of MS trials.
• ALS Therapy Development Foundation
  Provides a list of the treatments currently under controlled clinical investigation, and details on the location, design, and potential outcomes of these studies.
• American Cancer Society
  This nonprofit, working to eliminate cancer as a major health problem, has governmental and private cancer clinical trials for both treatment and prevention in a searchable database and general clinical trials information.
• American Diabetes Association
  This nonprofit working with diabetes research, information, and advocacy to prevent and cure diabetes has news and information about diabetes trials, and a link on how to find them.
• Cancertrialshelp.org
  Created by the nonprofit National Cancer Cooperative Groups, this is a network for specialists of cancer clinical trials in healthcare, institutions, and advocacy. The site includes an introduction to clinical trials, a database of government and private cancer trials, and a glossary of terms.
• Autism Speaks
  Provides extensive information about autism clinical trials currently soliciting participation.
• Cystic Fibrosis Foundation
  Provides general information about clinical trials along with descriptions of CF clinical trials underway and a list of therapies in the drug development pipeline.
• EmergingMed
  This is a site for finding government and private cancer clinical trials. The site has an explanation of clinical trials, a tool that tries to match you to a trial, and a news feature.
• Epilepsy.com
  Database of current clinical trials searchable by location.
• Juvenile Diabetes Research Foundation
  Links to a number of outside sources of information about clinical trials in juvenile diabetes.
• Lupus Research Institute
  Links to several lists of lupus clinical trials.
• Multiple Myeloma Research Foundation
  Provides extensive information about clinical trials, including the searchable Clinical Trials Monitor database.
• NCI
  As a part of NIH ,this institute conducts and supports research and other initiatives to prevent, diagnose, treat, and find the cause of cancer. The site has information on different types of cancer and related information, and an NCI-sponsored clinical trials database, among other things.
• OncoLink
  Based out of the University of Pennsylvania, this site includes information on types of cancer, treatments, and a UPenn cancer clinical trial matching tool.
• PDTrials.org
  Extensive Web site devoted to making information about Parkinson"s Disease clinical trials easily accessible to patients, including a searchable database of trials.
• Prostate Cancer Foundation
  A searchable catalogue of clinical trials is currently in development.
• Susan G. Komen Breast Cancer Foundation
  Provides general clinical trials information and links to NCI and CenterWatch listings of breast cancer trials.

Education, Outreach

• Center for Information and Study on Clinical Research Participation
  This nonprofit organization works to inform and educate those involved in clinical research and the public, encourage active participation in clinical trials, and facilitate collaboration among the clinical research enterprise. The site has clinical trials information, lists of frequently asked questions, resources, news, and facts and figures.
• Education Network to Advance Cancer Clinical Trials
  This nonprofit organization works to create new approaches to cancer clinical trials education, outreach, and recruitment. The site has information about their program working to increase community literacy about clinical trials.

Human Subject Protection

• Citizens for Responsible Care and Research
  This nonprofit human rights organization works to protect human subjects in research and medical treatment. This site has links to clinical trial sites and information on regulation and conduct in clinical trials.
• Department of Health and Human Services Office of Human Research Protections
  Provides leadership and oversight on all matters related to the protection of people participating in research conducted or supported by HHS. The site includes information on regulation and compliance for patients and others.
• Partnership for Human Research Protection
  Formed by the Joint Commission on Accreditation of Healthcare Organizations and the National Committee for Quality Assurance, this organization offers an accreditation program for research institutions which protects participants in clinical trials and research programs in public and private hospitals, academic medical centers, and other research facilities in the United States and abroad.

Veterans Administration

• Office of Research Oversight
  Deals with all matters of compliance and assurance with human subject protection and research compliance. The site includes information on policies, protections, and research for patients and others.
• Program for Research Integrity Development & Education
  Tasked with protecting participants in VA human research. The site has information on policies, training, credentials, and other resources for patients.

Regulation

• Good Clinical Practice in FDA-Regulated Clinical Trials
  As a part of the FDA website, this page provides information on regulation, enforcement, approved products, and has information pertaining to Good Clinical Practice in clinical trials, including monitoring information and ways to file complaints.
• Public Responsibility in Medicine and Research
  This nonprofit organization works to create, implement, and advance the highest ethical standards in research conduct. The site has various informational and educational resources for patients and practitioners, including certification of Institutional Review Board professionals.